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Coping, Dealing and Living with Constant Chronic Pain
January 1, 2005
4:58 pm
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Zinnie
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Oh lastly... someone asked if I was doing acupuncture because of the needles?

No. That is just them trying to take blood from me. Here I am, I have to have blood work run every three weeks - and I have horrible veins... they are really small, they are really deep, the tend to roll and then when they do finally get one? It will collapse.

One blood test and I look like a pin cushion. Or I used to. I finally found a nurse that uses a butterfly needle on me and get's it every time.

Z.

January 2, 2005
3:02 pm
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mamacinnamon
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Hey all,

Well today has been a day so far and it's only half over. First off, woke up hurtin, it's turning cold again. I'm used to that.

I could use some prayers. On the 14th the doc has scheduled this BIG meeting, 30 minutes of his time, to discuss my case. He's going over ALL the 15 prescriptions to see what we can do about taking less. (Am researching Cymbalta) And discussing about the rods in my neck, my weight haha sh$$, and whatever else.

Am trying to talk to my hubby. As I knew once he started being home at night things were gonna get touchy. He got up at 6:30 this am and I was on the computer. (He thinks I'm addicted to the computer) I am explaining to him that folks w/ fibro are tired but can't sleep for more than a little bit at a time. Well either the fibro or the sleep apnea, don't know which. So bad went to worse and I am trying to talk to him about the appt the 14th. Of course he goes off, docs are all stupid, I can only fix myself, there will be NO surgeries, etc. etc. etc. I told him that if he wants to have a say in my care he will HAVE to be at the meeting. If he's not there he has NO say in anything we decide to do surgery wise, or whatever. I know the man has attitude towards all this, who wouldn't. He says he's only trying to help and he's concerned, but all it comes across to me is fussin. Thank God he decided to go to Walmart.

Anyway, I feel like whining for once, so there ya got it. I need him to listen to me nicely. I like him input but just want it to be nice. I just don't feel like I should have to put up w/ this stuffins as well as everything else. Am already anticipating a big mess at the doc's office. I'm projecting....not good.

Thanks guys for the prayers in advance. I do truly appreciate each one of you.

January 2, 2005
8:47 pm
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Zinnie
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Hey Mama,

Definitely keeping you in my thoughts and prayers as you prepare for this meeting with your Dr. Although I must say it bothers me that the "great Dr." can only give you 30 minutes of his time? Again, I have to realize how totally spoiled I have become with my Family Dr. - if I need to spend three hours with him, I know I will get it. He is like that with all of his patients which is why he has so many and we will wait forever to see him. I called the other day to have something called in and was talking to the office manager - I asked if there was any way I could speak with the Dr. for a minute as I had a question. He asked me if Dr. could call me back because he was seeing a family dealing with a member in depression and was expected to be tied up for at least an hour and a half to two hours. I know that sounds like an inconvenience to some patients - but think about the family that he was talking to at the time? Think of how they felt knowing that they have a Dr. that cares that much to spend that much time with them? I wish everyone had a Dr. like him.

O.K. - back to you... sorry.

I wish I knew what to tell you about your husband. Mine is great support wise, and has been wonderful when it comes to listening to me complain. But, I again have to wonder if it's because he knows that ultimately I will go back to our family Dr. and ask his opinion, and my hubby trusts him?

But, you are right that if he does not go with you to the meeting and spend the time listening to the options that are available, then perhaps you need to make your own decisions regarding your own care.

What have you found out about Cymbalta? I'm hoping to hear from Ren'ai soon, as anything to help with the pain and depression both - I'm willing to try.

Z.

January 2, 2005
9:34 pm
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mamacinnamon
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Hi Zinnie,

Started researching and had to quit. The kids go back to school tomorrow and Eric starts days so I will have the whole day to myself to research the Cymbalt.

Have decided to make a kind of diary of what I eat and when; when and how much I sleep; that I am pumping my legs and doing my physical therapy daily and riding my bike; how much I wear the c collar; anything I can think of to send to him a few days before the appointment. I am not terribly impressed w/ this doc. He's the family doc and loves designating. He'll ask what went on w/ Box, the rheumy and say sounds good take that up w/ him. What's Caruso, pulmonary, doing. Says sounds good take that up w/ him. lol. I'd switch, but he's the common denominator to my rheumy and pulmonary and I like them alot. Have had enough quacks to last me more than my lifetime and that's what hubby's problem is.

Ren'ai - you ok? am thinking of you. Hope you are ok.

Also, Bel and Sew - how are ya'll.

Amanda and Worried Dad. Thanks for your concerns for Zinnie and each of us. Thanks for the prayers and hugs too.

January 2, 2005
10:31 pm
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Zinnie
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HI Mama,

Is there another primary that the other two can recommend you to perhaps?

I think perhaps that has been the most important thing in my treatment and care is the trust that I have in my family Dr. Again, because he also works in conjunction with all the other docs. The surgeon, the oncologist, OB/GYN, and also when needed my counselor - in dealing with some of the changes life throws my way.

Perhaps you can speak with the other two Dr.'s that you do like and ask them who would they recommend as a primary. I have found that for me, the best way to deal with all of this is for me to take control of my own decisions and treatment options - but, then again... I know I have all the finesse sometimes of a Sherman tank.

I have some goals this year that I really want to accomplish, one of course is to lose the weight that I have put on since adding all of this medication; which is going to require better eating habits which are sometimes hard to have while going through all of this as often times what I want to eat and what I can and need to eat are three very different things.

I know for a fact if I were to cut Coca-Cola from my daily routine I would drop at least five to ten pounds. The problem? Would you believe that with the cancer meds, one of the only things that calms my stomach is Coco-Cola Classic - not diet, and again the Dr. said it has something to do with the syrup. I know they sell just the syrup, but it is disgusting!

Always something.

It's raining heavily here, and like you it seems that when it rains is when the pain is worse. Years ago (about ten now) I fell and broke my right knee, so when the weather is damp it hurts like the devil. Add that to all the other pain, and I'm a mess.

Oh well... let me know what you find out on the Cymbalta. I plan on researching it myself too.. but am interested in what you find.

Talk to you soon...

Z.

January 3, 2005
10:39 am
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Hey Ladies,

I guess I can count last night as my 4th night with insomnia. I didn't fall asleep until 5:30am. I'm going back to the doctor today as I started running a low-grade fever last Thursday. This is common with CFS but for the last two days I have a sore throat again--something else common with CFS but I want to be sure it's not another strep infection.

I'm glad that some of you are considering looking into taking the cymbalta. I will tell you about some of the side effects I experienced, just so you know. It made me very nauseated, so I took it with phenergan for about the first month. I take it in the morning, and I don't have any problems with it, but I also take a medication called "provigil." It's a non-amphetamine medication that helps with narcolepsy and CFS, so maybe the only reason I didn't get sleepy was because of the provigil. It also made me very anxious for about the first month. I knew it was the medication, so I rode it out. The last thing--and the one that might scare you off, is that it has the potential to increase suicide ideologies at first. I struggled with this for the first 2 weeks, again, knowing it was a side effect of the medication and I would get through it. I did.

I don't know if any of you have "leg twitches" or the habit of always jiggling one of your feet, bouncing your leg, etc. If you have people look at you and say "You had too much coffee this morning." and you become conscious that you're jiggling, you probably have this symptom. I didn't realize how bad mine was until I was on the cymbalta for about 3 weeks and suddenly I wasn't doing it anymore.

I'm off to the doctor!

I'll be thinking of you all, sending you loving thoughts and energy.

Love to all,

Ren'ai

January 3, 2005
3:52 pm
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mamacinnamon
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Ren'ai,

I have that symptom. The leg twitches and leg jiggling. So what does it mean?

Am starting to research the cymbalta. Do you have any website you preferred for that?

Good luck at the doc's. Let us know what he says.

January 3, 2005
7:26 pm
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Zinnie
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I had a really bad insomnia night last night - horrible. Finally fell asleep at about 6:15, and have to be up at 7:00.

You know how you get that horrible feeling in the pit of your stomach from not having enough sleep? I had that on the way in to work, and much to my dismay at the stop-light began to throw up bile. I HATE that. I know it happens often because of the meds, so I keep bags handy. But, I'm sure the people on either side of me where like "YUCK!"

Anyway... I'm hoping to get some sleep tonight, as when I cam in the is morning, I had a ton and a half of work to do - and of course now it is just sitting there.

Where are those little elves when you need them?

Hoping you are ALL having a pain free day and night.

Love to all,

Z.

January 3, 2005
9:20 pm
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Juanita
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My great heart felt concern for you ladies. I wish I possessed the power to vanish your pains; physical, mental, and emotional. I have not been in situations such as all of yours, and lack the words to adequately express my sorrow at what you have to deal with your pain any where near to do it justice.

God's blessings on all of you to give you strength, and some respite from it all. I am glad you have found one another to turn to, lean on, and to truly understand one another.

I wish I knew more what to do or say to help. Perhaps knowing someone is thinking of you will help...

Much strength to you all.

Juanita

January 3, 2005
10:08 pm
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mamacinnamon
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Hi all,

Zinnie, I am so sorry you had such a terrible day. I hate that throwing up in the car in public thing. Bad enough without spectators.

OK, I have the research on the Cymbalta. It's long but I'm gonna do my famous copy and paste. (I so love those 2 keys) The first is a cymbalta website. The second is from Medscape, a medical site. There was some controversy about it causing suicide. I didn't print those, seemed to be in children and adolescence. If you want to check it out or any of the other things just put cymbalta in the search line and away you will go.

What Is Cymbalta?
Cymbalta is indicated for the treatment of major depressive disorder, as well as for the management of diabetic peripheral neuropathic pain (DPNP).
Cymbalta offers relief from both the emotional and physical symptoms that are associated with depression. It works to help restore the balance and increase the levels of two naturally occurring chemicals in the brain and body that experts believe are related to both depression and diabetic peripheral neuropathic pain (DPNP).

How Cymbalta Works
Cymbalta works to help restore the balance of two naturally occurring chemicals in the brain and body: serotonin and norepinephrine. Research suggests that these chemicals play a role in both depression and diabetic peripheral neuropathic pain (DPNP).
In the brain, serotonin and norepinephrine are associated with transmission of thoughts and feelings. Throughout the body, these chemicals help "turn down" the volume of pain signals. If these chemicals are out of balance, you may experience emotional symptoms, like depressed mood, or physical symptoms, like aches and pains.
Cymbalta helps restore both serotonin and norepinephrine. By addressing both, Cymbalta effectively relieves a broad range of depression symptoms. Cymbalta also effectively manages diabetic peripheral neuropathic pain (DPNP).

How Can Cymbalta Help?
Cymbalta has been approved by the FDA for the treatment of major depression, as well as the management of diabetic peripheral neuropathic pain (DPNP). Cymbalta is available in pharmacies.
Cymbalta addresses both the emotional and physical symptoms of depression. In clinical studies, many people began to show improvement in both emotional and physical symptoms in as early as one to four weeks. However, results may vary from person to person.
In a separate clinical study, many people suffering from diabetic peripheral neuropathic pain (DPNP). felt significant relief in as little as one week, with continued improvement over the 12-week course. Patients also felt significant pain relief at night in as little as one week, with continued improvement over the 12-week course.
Of course, Cymbalta is not for everyone. As with any prescription medication, it helps to be aware of the most common side effects and potential risks associated with treatment. For complete product information refer to the full prescribing information.

Precautions for Taking Cymbalta
You should NOT take Cymbalta if:
·You are allergic to duloxetine hydrochloride or other ingredients in Cymbalta.
·You currently or have recently taken a monoamine oxidase inhibitor (MAOI).
·You are taking thioridazine.
·You have uncontrolled narrow-angle glaucoma.

Depression, as a disease, can be associated with periods when the symptoms can worsen or thoughts of suicide can emerge. If you have thoughts of suicide, call your physician immediately. Patients and their families should watch for these as well as for anxiety, agitation, panic, difficulty sleeping, irritability, hostility, aggressiveness, impulsivity, restlessness or overexcitement and hyperactivity. Call the doctor if any of these are severe or occur suddenly. Be especially observant at the beginning of antidepressant treatment or whenever there is a change in dose.

Tell your doctor if you:
·Have serious liver or kidney problems or glaucoma.
·Are pregnant or nursing.
·Consume large quantities of alcohol.
·Are taking other prescription or nonprescription medications.

If you have questions, talk to your doctor before taking Cymbalta.
For additional safety information, please refer to the full prescribing information for healthcare professionals (PDF: 77KB).

Possible Side Effects of Cymbalta
In clinical studies for depression, the most common side effect when taking Cymbalta was nausea. For most people, the nausea was mild to moderate, and usually subsided within one to two weeks. Other common side effects were dry mouth, constipation, decreased appetite, fatigue, sleepiness, and increased sweating. Most people were not bothered enough by side effects to stop taking Cymbalta. Your doctor may periodically check your blood pressure while you are taking Cymbalta.

In clinical studies for diabetic peripheral neuropathic pain (DPNP), the most common side effect when taking Cymbalta was nausea. For most people, the nausea was mild to moderate, and usually subsided within one to two weeks. Other common side effects were sleepiness, dizziness, constipation, diarrhea, dry mouth, increased sweating, decreased appetite, and muscle weakness. Most people were not bothered enough by side effects to stop taking Cymbalta. Your doctor may periodically check your blood pressure while you are taking Cymbalta.

© 2004 Cymbalta News. Cymbalta News is in no way associated or affiliated with Eli Lilly.

___________________________________

Duloxetine (Systemic)

Contents of this page:
· Brand Names
· Category
· Description
· Before Using This Medicine
· Proper Use of This Medicine
· Precautions While Using This Medicine
· Side Effects of This Medicine

Brand Names
In the U.S.—
· Cymbalta

Category
· Antidepressant
· antineuralgic

Description
Duloxetine (du-LOX-uh-teen ) is used to treat mental depression. It is also used for pain caused by nerve damage associated with diabetes.
Duloxetine belongs to a group of medicines known as selective serotonin reuptake inhibitors (SSRIs). These medicines are thought to work by increasing the activity of a chemical called serotonin in the brain.
This medicine is available only with your doctor's prescription, in the following dosage forms:

Oral

·Delayed-release capsules (U.S.)

Before Using This Medicine:

In deciding to use a medicine, the risks of taking the medicine must be weighed against the good it will do. This is a decision you and your doctor will make. For duloxetine, the following should be considered:

Allergies—Tell your doctor if you have ever had any unusual or allergic reaction to duloxetine. Also tell your doctor and pharmacist if you are allergic to any other substances, such as foods, preservatives, or dyes.

Pregnancy—Duloxetine has not been studied in pregnant women. Duloxetine should only be used during pregnancy if the potential benefit outweighs the potential risk to the baby. Before taking this medicine, make sure your doctor knows if you are pregnant (especially if it is the third trimester) or if you may become pregnant.

Breast-feeding—Duloxetine passes into the milk of rats. It is not known whether it passes into human milk. Because the effects of this medicine in nursing babies is not known and because of the risks, duloxetine is not recommended if you are breast-feeding.

Children—Studies on this medicine have been done only in adult patients, and there is no specific information comparing use of duloxetine in children with use in other age groups.

Older adults—This medicine has been tested and has not been shown to cause different side effects or problems in older people than it does in younger adults. However, elderly patients are more likely to be sensitive than younger adults to the effects of duloxetine.

Other medicines—Although certain medicines should not be used together at all, in other cases two different medicines may be used together even if an interaction might occur. In these cases, your doctor may want to change the dose, or other precautions may be necessary. When you are taking duloxetine, it is especially important that your doctor and pharmacist know if you are taking any of the following:

·Antidepressants (fluoxetine [e.g., Prozac], paroxetine [e.g., Paxil])—Taking certain medicines for depression with duloxetine may increase your chance for side effects.
·Antiarrhythmics (flecainide [e.g., Tambocor], propafenone [e.g., Rythmol], Quinidine [e.g., Quinaglute, Quinidex])—Taking certain medicines for an uneven heartbeat together with duloxetine may increase the chance of getting serious side effects.
·Monoamine oxidase (MAO) inhibitor activity (isocarboxazid [e.g., Marplan], phenelzine [e.g., Nardil], procarbazine [e.g., Matulane], selegiline [e.g., Eldepryl], tranylcypromine [e.g., Parnate])— Do not take duloxetine while you are taking or within 2 weeks of taking an MAO inhibitor, or you may develop serious side effects. At least 14 days should be allowed between stopping treatment with one medicine (duloxetine or the MAO inhibitor) and starting treatment with the other
·Phenothiazines (e.g., Compazine, Phenergan, Thorazine)—Taking phenothiazines together with duloxetine may increase the risk of side effects.
·Tricyclic antidepressants (amitriptyline [e.g., Elavil], desipramine [e.g., Norpramin], imipramine [e.g., Tofranil], nortriptyline [e.g., Aventyl])—Taking certain tricyclic antidepressants together with duloxetine may increase the risk of side effects.
·Thioridazine (e.g., Mellaril)—Taking thioridazine with duloxetine may cause serious heart problems.

Other medical problems—The presence of other medical problems may affect the use of duloxetine. Make sure you tell your doctor if you have any other medical problems, especially:

·Bipolar disorder (mood disorder with alternating episodes of mania and depression) or risk of—May make condition worse. Your doctor will check you for this condition.
·Diabetes mellitus (sugar diabetes)—May increase your blood sugar.
·Kidney disease, severe, or
·Liver disease, severe—Higher blood levels of duloxetine may occur, increasing the chance of side effects.
·Mania (history of)—The condition may be activated.
·Narrow-angle Glaucoma—May increase your chance of getting blurred vision.
·Seizures (history of)—The risk of seizures may be increased.

Proper Use of This Medicine
Take this medicine only as directed by your doctor to benefit your condition as much as possible. Do not take more of it, do not take it more often, and do not take it for a longer time than your doctor ordered.
Swallow the capsule whole. Do not chew, crush or sprinkle the contents on food or mix with liquids before swallowing.

Dosing—
The dose of duloxetine will be different for different patients. Follow your doctor's orders or the directions on the label. The following information includes only the average doses of duloxetine. If your dose is different, do not change it unless your doctor tells you to do so.
The number of capsules that you take depends on the strength of the medicine. Also, the number of doses you take each day, the time allowed between doses, and the length of time you take the medicine depend on the medical problem for which you are taking duloxetine

·For oral dosage form (capsule):

o For treatment of depression:
§ Adults—40 milligrams (mg) a day (given as 20 mg twice a day) to 60 mg a day (given either once a day or as 30 mg twice a day) with or without meals.
§ Children—Use and dose must be determined by your doctor.

o For treatment of pain associated with diabetic peripheral neuropathy
§ Adults—60 milligrams (mg) a day with or without meals.
§ Children—Dose must be determined by your doctor.

Missed dose—
If you miss a dose of this medicine, take it as soon as possible. However, if it is almost time for your next dose, skip the missed dose and go back to your regular dosing schedule. Do not double doses.

Storage—
To store this medicine:
·Keep out of the reach of children.
·Store away from heat and direct light.
·Do not store in the bathroom, near the kitchen sink, or in other damp places. heat or moisture may cause the medicine to break down.
·Do not keep outdated medicine or medicine no longer needed. Ask your health care professional how you should dispose of any medicine you do not use. Be sure that any discarded medicine is out of the reach of children.

Precautions While Using This Medicine:
It is important that your doctor check your progress at regular visits, to allow for changes in your dose and to help reduce any side effects.
Duloxetine has not been shown to add to the effects of alcohol. However, use of alcohol is not recommended in patients who are taking duloxetine.
Duloxetine may cause some people to be agitated, irritable or display other abnormal behaviors. It may also cause some people to have suicidal thoughts and tendencies or to become more depressed. If you or your caregiver notice any of these adverse effects, tell your doctor right away.
Four weeks of duloxetine may be required before your symptoms improve. It is important to continue duloxetine after symptoms of depression are relieved.

Do not suddenly stop taking your duloxetine. If you have been instructed to stop taking duloxetine, ask you healthcare professional how to slowly decrease the dose. This is to decrease the chance of having discontinuation symptoms such as dizziness, nausea, headache, vomiting, irritability, nightmares, prickling or tingling feelings.
Do not take duloxetine if you have taken a monoamine oxidase (MAO) inhibitor (furazolidone, phenelzine, procarbazine, selegiline, tranylcypromine) in the past 2 weeks.

Do not start taking an MAO inhibitor within 5 days of stopping duloxetine. If you do, you may develop confusion, agitation, restlessness, stomach or intestinal symptoms, sudden high body temperature, extremely high blood pressure, severe convulsions, or the serotonin syndrome.

For diabetic patients:
·This medicine may affect blood sugar levels. If you notice a change in the results of your blood or urine sugar tests or if you have any questions, check with your doctor.
Duloxetine may cause some people to become drowsy or have blurred vision. Make sure you know how you react to this medicine before you drive, use machines, or do anything else that could be dangerous if you are not alert or able to see clearly.

Side Effects of This Medicine:
Side Effects of This Medicine
Along with its needed effects, a medicine may cause some unwanted effects.
Other side effects may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. However, check with your doctor if any of the following side effects continue or are bothersome.
·More Common
o Cough; diarrhea; difficulty having a bowel movement (stool); dizziness ; dry mouth; fever; frequent urination; headache; lack or loss of strength; loss of appetite ; muscle aches; nausea; sleepiness or unusual drowsiness; sleeplessness ; sore throat; stuffy or runny nose; sweating increased; trouble sleeping; unable to sleep; unusual tiredness or weakness; vomiting; weight loss

·Less common
o Abnormal orgasm; acid or sour stomach ; belching; change or problem with discharge of semen; decreased interest in sexual intercourse; difficulty in moving; erectile dysfunction; fear; feeling of warmth redness of the face, neck, arms and occasionally, upper chest; heartburn; inability to have or keep an erection; indigestion; joint pain; longer than usual time to ejaculation of semen; loose stools; loss in sexual ability, desire, drive, or performance; muscle aching or cramping; muscle pains or stiffness; nervousness; shakiness in legs, arms, hands, feet; stomach discomfort upset or pain; sudden sweating; swollen joints; trembling or shaking of hands or feet; vision blurred

Other side effects not listed above may also occur in some patients. If you notice any other effects, check with your doctor.

Developed: 09/22/2004

January 4, 2005
4:27 pm
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Anonymous
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Zinnie,

Sorry to hear about your insomnia. I like the part of this movie called "Fight Club" where this guy has insomnia and says when you have it, you are never really asleep, but never really awake--everything becomes like a copy of a copy of a copy...

MamaC,

Thanks for posting the Cymbalta information. I know it seems weird that it's for diabetics with leg pain, but trust me, it works on leg pain in general.

I have strep again. I just got off the phone with my mom. She was asking how I'm doing and it was all I could do not to give in to despair. I'm tired of being tired and sick all the time. I know you guys can relate.

I was looking at my chart to see how many times I've been treated for strep in the past 6 months. It averaged about once a month. I stumbled across something I either didn't realize or didn't want to take in--I'm diagnosed with fibromyalgia and CFS in the doctor's records. I remember her suggesting once that she thought I had fibro but I blurted out "No way! That's not what this is!" Amazing how far into the ditch a little denial will get you...

I luv you guys!

Ren'ai

January 4, 2005
5:29 pm
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mamacinnamon
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Ren'ai,

I'm so sorry. I've hit that brick wall myself. I got the fibro probably 10 years ago, but not until this last spring did I have HAVE to face that I was seriously sick. I just accepted (or so I thought) and went about my business all those years. It's just the way it is. Then SMACK! I have a book you should get. It's called: Fibromyalgia & Chronic Myofascial Pain, A Survival Manual, Second Edition, by Devin Starlanyl and Mary Ellen Copeland. It is so good about explaining what the illness is, why, what for, where you could be going, etc. It's an absolute must if you want to stay on top of your illness.

May I ask when you got diagnosed w/ the CFS and fibro. Also, I really want to talk about this strep infection thing. I had the strep infection for month after month back in '91? I think. I know it was 90 or 91 coz I was a single mom at the time and was so very sick I dragged the matress off the bed into the living room on the floor so I could take care of my kids while I lay there dieing of the strep. I don't know how many rounds of antibiotics I went thru, seems like 3-4 months or more.

What's the docs tellin you now?

Oh, one more thing I wanted to mention. Talked to two girls on the fibro site I go to and they are both on Cymbalta. The one was on 60 mg and went into seizures and something else happened. The other is on 30mg and extremely nausiated and is gonna go up to 60 mg in a week or two. Was told she'd have to take 60 mg to make any difference. Just for your info, and Zinnie's too.

So sorry you are not doing well. Wish I could help ya. Let me know how you are doing.

Well, the rain has started and we are to be sittin under 3/4" ice by morning so probably will have no school, no electricity, no nothin.
Will check back before bedtime, have a good night.

January 4, 2005
8:59 pm
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Wow. I guess the Cymbalta either works or it doesn't, huh? I am on 60mg as higher doses than that haven't been proven therapeutic. I started on the 60, didn't work my way up or anything. It did make me really sick to my stomach. And I had the misfortune of running out. The withdrawal sypmtoms of this bizarre "electric shock" sensation in my head was about to make me insane. A friend loaned me money to pay for it so I wouldn't have to go through that anymore. That's another thing about the Cymbalta, it is expensive! Even with insurance it costs me $40 a month. That, combined with the provigil, ambien, etc. tops $150 a month. It's a stretch as a single mom, both kids living at home, supporting a soon to be mommy as my son's girlfriend is pregnant and lives with us.

But enough of the 'hum-drums'...

I survived another day. I'm not feeling great, but I feel proud. I know that I'm sick for a reason. I believe it ultimately will strengthen my spirit, and that's where it's at for me--it's all about spirit. This body will die, but my spirit will live on so if I learn many lessons from this illness, then I can make new choices next time around, and maybe "slack" for a lifetime or two--plan to be adopted by Rosie O'Donnell or something...whose to say they (the rich) have it any better than us anyway? Money can't by you health, only good health care! (okay, I'm a little goofy cuz I'm tired).

It is pouring here as well, but the drops were freezing just a few minutes ago. I have a feeling we are in for some snow and I'm not at all looking forward to it. However it's been raining here for 2 days, which is so weird for us here in the desert this time of year. We need the moisture and if it holds until Spring, what a beautiful Spring it will be, right?

Don't get frozen, and thanks for the info. on the book!

Love,

Ren'ai

January 5, 2005
12:31 am
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Zinnie
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Ren'ai (and others),

I posted another thread here a few months ago about getting medications for free. I learned about this program while we were taking care of my husband's Grandmother - and you can make up to $60,000.00 per year and still qualify.

Do you want me to find the thread? Or you can look for it - if I remember right, it is titled something along the lines of "Info for Smiles" or something like that.

I know there are some medications that work, and some that don't. I think they more than likely work with how our individual body chemistry works. I mean the general parameters are important, but that is why it is important that you have a good Dr. that you feel you can trust to help you with whatever issues you are going through.

In any case, I need to try to get some sleep today. I feel like a total heel - I called in sick to work because I felt so bad. Went to the Dr., turns out I have not only a bronchial (sp?) viral infection, but an intestional infection too. You know I can never just have the hiccups. If I did, it would be a prelude to something - honestly.

Thanks for all the info above ladies, I will be printing it out and reading over my lunch tomorrow...

Wishing you all a good night - and a pain free time - no matter for how short of a time... but, hopefully forever.

Love to all,

Zinnie

January 5, 2005
11:08 am
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Zinnie,

Good for you for calling in sick!!! I should have been out of work all week long but can't afford to take anymore time off. I'm out of sick and annual leave because I have used so much time over the past couple of months! It sucks!!!

Thanks for the information on the assistance with medication. I'll see if I can find the thread.

Be good to yourself today.

Love,

Ren'ai

January 6, 2005
5:37 pm
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Ren'ai,

You wrote "I don't know if any of you have "leg twitches" or the habit of always jiggling one of your feet, bouncing your leg, etc. If you have people look at you and say "You had too much coffee this morning." and you become conscious that you're jiggling, you probably have this symptom. I didn't realize how bad mine was until I was on the cymbalta for about 3 weeks and suddenly I wasn't doing it anymore."

What causes this? I do it alot and even so hard the pc monitor is shaking.

January 6, 2005
9:09 pm
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I'm not sure what causes it, to tell you the truth. I can only hypothesize that it has something to do with the way our muscles are being affected by the fibromyalgia or CFS, since both are "neurological" ailments.

Sometimes I'll be trying to sleep and find myself almost wrything about, unable to get comfortable. When I do a little emotional self-assessment, I usually find that I'm feeling an inordinate amount of anxiety, also a lovely symptom of these illnesses. When that happens, I can usually take 1mg xanax and be comfy and resting within 30 minutes.

Hope everyone is doing alright.

Love to all,

Ren'ai

January 7, 2005
8:21 am
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Hey, Zinnie, Ren'ai, Sew, Bel, anyone I forgot (sorry)......

How are you each doing?

I'm starting my day ouchy. It's gonna be a day I have to wear that danged collar all day. Also, am clogged. That's normal for me. lol
Got housework to do today so better get goin at it since the bath and kitchen will take me most of the day w/ my on and off schedule.

Hope ya'll are doin well.

January 7, 2005
1:42 pm
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Hello Mama and all,
Im doing okay but legs are very stiff each time I get up and walk. My left ankle hurts but thats an everyday thing too, my left fake knee hurts but I can still walk so not going to dwell on that. I am happy to be alive and enjoying every min that I can.

But I am at work and would rather be out doing something fun like shopping!!!

Bel

January 8, 2005
11:21 pm
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Zinnie
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Some good news!

As of yesterday, we have triplets!

Everyone is healthy and doing well - daughter-in-law is resting (after a C-Section) and the babies are all fine.

We have two girls and a little boy.

Hope all is well with all of you.

Z.

January 9, 2005
2:45 am
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Zinnie,

Oh wow! How awesome! =)

So now this makes 5 for them, correct?

All under 5 right? Dare I say they are even all under 4?

Well congrats! (((Hugs)))

~Amanda~

January 9, 2005
3:08 am
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Hi Amanda,

This makes five under the age of one - the twins will be one next month.

Although we are happy and delighted, the Dr. has told both of them, absolutely no more children for at least two to three years. My poor daughter-in-law's body has just been stressed to the limit I'm afraid.

I'm trying to remember, but it seems that in her fourth or fifth month of this pregnancy the Dr. told her to stop breast feeding the twins, and she has strongly recommended that she not breast feed at all this time due to the toll on her body.

She (the Dr.) did ask both of them several times if they wanted to tie her tubes after delivery, but they both said no - so, I'm guessing they want may want more children at a later time.

This is going to be a lot to handle - the twins are getting pretty mobile. Over Christmas they were crawling all over the place, and it seemed like they were going in two different directions at all times - I can't imagine five moving all around in a year.

But - all in all? It's great news - and everyone is doing well, feeling fine - there were no problems or complications, and judging by their first pictures that I got today from my son the shutterbug - they are gorgeous... but I might be a little biased :)!

January 9, 2005
3:13 am
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Whoa. That is harder than having 5 at one time... (I think) Because she had to go through two separate pregnancies and deliveries.

LOL More? Well, I have always wanted a lot of children too. =)

I hope I'm that fertile once I get married! hehe

Does she have any secrets? Isn't she from France? Maybe it's the goat’s milk? Or the fresh mountain air? lol Just kidding. =)

January 9, 2005
3:46 am
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My son is French Canadian, raised in Montreal & Quebec, my daughter-in-law is Norwegian and raised in Norway. They met in Amsterdam while he was working there.

My mother-in-law was a twin, and my daughter-in-laws mother and father were both twins. Multiples run high in her family, she has a set of twin brothers and her sister is now expecting a set of twins in another four months. This is the first triplets though that any of us know about.

January 9, 2005
7:27 am
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Zinnie,

Congrats on the new arrivals! Isn't our God truly awesome.

Love and Hugs to the new babies and their folks. I know you will spoil them w/ all the love you have.

How totally cool.

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