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Why is it? (warning: complaining)
September 19, 2000
1:27 pm
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Cici
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Why is it that the US is the most expensive country in terms of health care costs, yet a new article from the Journal of the American Medical Association (JAMA July 26, 2000) states that docotrs are the third leading cause for deaths in the US? Doctor-related mistakes, misdiagnoses, prescription errors are so common we don't even blink an eye when it happens any more.

I'm just frustrated. I recently had to apply to m University's Office for Students with Disabilities. I'm looking at myself thinking that maybe I wouldn't be here if it hadn't been for mistakes and multpile misdiagnoses. I used to be a partier, healthy adn vibrant and social. My disease has progressed to the point that I can't socialize much any more. I go to two classes (barely) and have reduced my work schedule. I can't even volunteer any more. I try not to have a pity party, and my support group for gastroparesis really helps.

So now there's no medication for my disease because only about 100,000 people in the US have it. I'm tired of fighting with doctors and bringing in research that they don't even know about. I'm tired of going to the doctor every month while she puzzles over test results that show nothing.

I'm tired. I'm tired of shoveling out fistfuls of money to greedy insurance companies. I'm tired of waiting for a new drug to come out. I'm tired of people telling me that I just need to eat more fresh fruits and vegetables when I can't digest them. I'm tired of getting prescriptions that are contraindicated from stupid doctors who don't know what they're doing. I'm tired of being me.

September 19, 2000
3:00 pm
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Molly
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I was raised by a third generation mortician, who never took us to the doctor, unless it was truly some thing strange. All three of us kids grew up healthy. Very few scripts, and lots of mental stuff. We were not christian science but used lots of the stuff. WE had no reward in illness, and my dad, who corrected mostly doctors mistakes did not trust them. In my theisis, on women and substance abuse, and the formation of the pharmalogical association, was based on control and greed. My science project husband, who could get things under controll with meditation, diet, weight loss, and perhaps walking. Prefers to take the next pill with the next pill, and nothing changes for the symptom, I am just waiting for his liver to go. All of the synthetic stuff we take in, all the toxins, all the stress, and more and more. I can't blame you for your frustration. Have you tried to research, and explore alternative healing remedies? Going to the md for me is like taking the car to the shop, the window doesn't work, but when you get it back the engine dies. I think we need to make major life changes, look at the md's and hmo's and realize that it is a cash cow, and not many are healers. I don't know much about your affliction, but I bet you could pull up more information than your md. My science project takes all the documentatio I find with him, we are certain that he has a specific condition which, only 1 in 50k get and the test result shows border line, but they say no. Don't get angry get educated. I bet it has alot to do with emotions, most illness or dis-ease does.

September 20, 2000
6:49 am
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hazza
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hi cici,
sorry you are feeling bad right now. I can kind of sympathise with you.
I got NO help at all when I went to the doctores about my Agoraphobia. I ahd to do it all alone, but luckily I too found a support group that does great work and they helped alot.
But I am lucky in that, agoraphobia is very much a mental condition in regards to recovery rather than a physical one. I have a brain, therefore I have the one tool that I need to recover. It is not the same as an organic problem like you are having.
Although all the symptoms you have desribed can also come from anxiety problems too, so I bet the methods I use daily would help at least alleiviate some of the discomfort.
Luckily we have a National Health Service here int he UK. It gets a lot of bad press here, but on the whole they do a bloody good job considering.
That said, when they put me on the lsit to recive some kind of Therapy for my Aggy, the waiting list is over 2 years - I guess that is why I got on with it and did it myself!
Must be in my blood - my grandad never went to a dentist and did his own fillings! the day he extracted his own tooth was amusing, but i don't suggest we take the Do It Yourself approach THAT far!!
right now for you, you really must try your best to keep patient and calm despite all the ineptitude around you. All that stress will make your symptoms worse. You CAN use that brilliant mind of yours to help you through this Cici = I know how brilliant your mind is - you CAN channel that power to help your physical body.
so try not to get too down - things will improve. The amount of reserach you are doing for yourself will pay off in the end - you will be able to do as much as you can to help yourself.
I aint got no answers for the organic parts of what ails you. Wish I did, but I know you can cope. You have had a really rough ride and your body is reacting to all that stress also. All you can do is try the best to keep your mind and body as relaxed as possible and keep on trying.
Do look into alternative remedies - after all what have you got to lose? keep on researching every window - both in conventional western medicne and alternative and sooner or later the fog will clear and you will find something that will help.
Hugs and feel free to moan when ever you like - moaning helps!! I am a big fan of maoning - some would even say I have turned professional!
Peace
Hazza

September 20, 2000
10:26 am
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Cici
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Thanks you guys. You really echo my own feelings in your posts. It's just so sad to me that doctors, who should be healers, are subject to the capitalist market. Medicine shouldn't EVER be about profits but humans being humans, we tend to make everything about money.

I took your advice to heart. I dug through my books from high school and found "The Herbal Bible." I trotted over to the health food store and found some ginger tea and enzyme capsules that were recommended for my problem.

Last night I went without my prescriptions except for my birth control pill (gotta take that one) and my trusty zantac. Following my doctor's diet modifications and drinking a lot of tea helped me deal with the discomfort that came. When I woke up my stomach seemed ok. I don't know. Last night was pretty bad and I know that my propulsid was still in my bloodstream. I'm gong to continue the experiment with my homeopathic medicine and see if it works.

September 20, 2000
11:46 am
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confused mom
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Cici... go for it!!!
I went to an acupuncturist for healing when I felt that the doctors were not doing enough. He also gave me some herbs to drink. I too had to seek alternative medicine. Hey what else can you do when you are not getting results... take things into your own hands.. Good luck!!!

September 20, 2000
8:22 pm
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guest_guest
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complainig is good. i like it. please go on!

September 22, 2000
12:01 am
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guest_guest
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i meant to say, i do it too

September 22, 2000
6:17 am
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hazza
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Hey there Cici,
I saw a little tiny paragraph in a womens magazine yesterday I thought you may be interested. This is just what I saw - you will need to see if it holds any water or not! or should I say "stands up" to scrutiny! (groan!)
"HOPES RAISED"
" The Impotence drug, Viagra might be a cure for the indegestion suffered by many diabetics, US scientists have done tests on mice and now hope Viagra will cure Gastroparesis - which causes boating and sickness in humans."
That was all the little paragraph said - don't know if it will help or not. Take care
hazza

October 3, 2000
11:28 am
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Cici
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Well, I read about the Viagra. There are some concerns about cardiac problems, which is why they took propulsid off the market in teh first place (the original drug I took for this disease).

Hospital. Yesterday I went. Intern, gastroenterologist, dietician. New round of medications.I stayed home from school and work after the three hour visit and sat around, watching TV, doing laundry adn dishes. I stood back and thought, "well, this is going to be my life after college."

Don't get me wrong, I'm not complaining. I just feel so sickly sometimes. It's ahrd to exercise when you don't take in enough calories to support your basal metabolism.

I feel stuffed, too, trying to take in enough protein and just not being able to digest it. I feel pretty good, I don't know, it just sucks.

Sometimes I get really upset at people who have their health. I mean physical, not mental health. I just get so envious. And angry that those who are healthy mistreat or take for granted what they have.

I just feel like saying, why odn't you take my digestive tract. I'll take yours. Then you can really complain about something and I can take full advantage of the gift of health that God gave to you.

It's about limits, I guess. I'm rambling. I just want to be able to eat solid food again.

October 3, 2000
7:46 pm
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Molly
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I am sorry, now ms. shrink work your own miracles in your head, this is not forever, you will heal, keep telling your self, you don't have time to be sick. Got it.

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