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Please pray for my two oldest babies...
November 3, 2006
3:41 pm
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Mich,

thanks for bumping. I read what's here, plus the first post. Does your daughter have a shunt to relieve fluid buildup in the brain? Sometimes those can get blocked or need repositioning etc.

I am sorry for all the stress your family is going through. I suppose in the old days your daughter wouldn't have been able to live this long... so I really believe we are better off now. But, our fast-paced society makes so many demands that there isn't much space given for pain, suffering, and long healing processes.

Love, hugs and good thoughts ((((Mich + h + children))))

kroika

November 3, 2006
3:46 pm
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ScaredinMichigan
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kroika-

They told us after the (2nd) decompression that she had developed hydrocephalus, because the internal stitches blew out again. We believed them. After 8 shunt related surgeries that NOT ONE worked, I demanded that they remove it all together. She has not had another shunt since last August...She has been doing SO good. Now this...I am so frustrated...I just don't even know what to say. I am sure somewhere along the line that going to Cleveland is a good thing, but it just pisses me off that it had to get to that point.

Mich

November 3, 2006
4:06 pm
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ggfred4
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Mich, I am so sorry your baby girl has to go through this again, but she needs answers as well as you and your husband...I like what Isis said to you and things are moving forward, okay...I know it is hard and you are struggling,,,,waiting is horrible....Love you, sweetie...

November 3, 2006
5:15 pm
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jastypes
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{{{Mich}}}}

I'm continuing to pray for a non-surgical intervention and complete healing. Sounds like they haven't actually determined what is going on, but they are sending you to someone who hopefully can find out. Remember, your Heavenly Father knows exactly what is wrong, and exactly what needs to be done about it.

jill

November 3, 2006
5:31 pm
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lovinglife
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Ok I found ya now : )

November 3, 2006
5:35 pm
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lovinglife
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((((((((Mich)))))))

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