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daughter has scoliosis and just found out that surgery is needed
September 3, 2005
12:24 pm
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tooscared
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Thanks for the hugs CodaMom. And thanks for your caring Louys. I know you are trying to make sure that we look at all options before making such a big decision. We are doing lots of research and trying to be very responsible parents in all of this. I don't want to do anything that will cause more problems for our daughter in the long run. This is overwhelming at the moment for me as I am also dealing with my dad being back in the hospital and struggling with a bone infection.

So, thanks for the love and prayers and I will keep you informed as things go along with my daughter.

Love, TS

September 3, 2005
9:20 pm
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mamacinnamon
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tooscred:

Just wanted to check in and see how you and your daughter are gettin along? Thinkin about you (((ts & daughter)))))

September 3, 2005
11:34 pm
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lost and found
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hey, i know two people with scol...
one is sixteen and had the surgery late last year. she is cheering this year and can do anything she wants. (she cannot be a part of the pyramids, or throws in the air) other than that, she says she feel the best she can ever remember and would do the surgery again in a snap.
my other friend is thirty. she has put off the surgery for years. the scoliosis has progressed to the point that she has two ribs jutting out in the front pressing on her lungs. she is in constant pain. unfortunately for her, she can still have the spinal surgery but it has progressed so far that it will have to be done in at least two diff surgeries. she has two small kids, loves to fish, and just having to be so inactive is about to kill her.

September 4, 2005
8:54 am
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tooscared
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Thanks for the support everyone. It is hard to imagine two metal rods being put in my daughter's back and her spine being fused. I just can't quite comprehend it yet. She is worried about doing school work and not being able to bend over to be near her work. She is kind of worrying about the little things right now that are important to her as I think it is too hard at this point for her to worry about the actual scariness of this operation.

Mamac., I hope Erica does well with her surgery coming up. Is she nervous? How are you handling it? It is a week from this coming Thursday, right?

Thanks for the info Lost and found. I like hearing the cheerleading story as my daughter is a dancer and we don't know how that is going to be affected yet.

Love, TS

September 6, 2005
3:24 pm
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tooscared
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Just an update. The MRI which was scheduled for tonight has been changed because we found out they had scheduled us with an out-of-network facility. Now we are rescheduled for Thursday afternoon and have to be there at 1:45. The MRI is suppose to be at 2:00, but the good news is that this one will be an open MRI, which shouldn't be as scary for my daughter. The slightly bad news is that my counselor has been gone for 6 weeks and Thursday at that exact time was my appt.. No big deal- I will just call and either reschedule or cancel and wait another week. Daughter is much too important at this point.

I just knew that some were thinking about us and praying. I really appreciate all the concern and prayers.

Love, TS

September 7, 2005
9:47 am
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mamacinnamon
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ts:

Glad the mri was changed. Will be praying at that time.

Erica is doin good. We blew it off as no big deal. little cut, scoop it out, sew you up, little sore, no big deal. I do know it is on her mind coz have had several teachers tell me she told them about her surgery comin up. But, as for worried, not yet.

You keep your head up and be strong for your daughter. You are obviously a good mom. She knows but tell her how much she means to you anyway.

Have a great day.

September 7, 2005
1:43 pm
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bel
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Hello TS, hoping your feeling good today and not worried to much about not talking to your counselor, I think your doing a great job on your own.

I will keep your daughter in my prayers and hope the MRI goes smoothly.

And TS I want to say Thank you so much for all your comforting words and for thinking about me and my son.

He had his surgery yesterday and did very well. He is a bit sore this morning but nothing he cannot handle. Now we are waiting for the outcome of the test to see if negative or positive for Hodgekins.....

Take Care
Bel

September 8, 2005
10:46 pm
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tooscared
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My daughter's MRI went pretty well. It was a long time for her to be still and they did two different scans. They did one on her upper and middle back and then one on her neck. They almost couldn't do the one on her neck because of her wearing braces on her teeth. Finally the lady was able to make it work. The room was freezing and I felt like a popsicle. The lady finally gave my daughter a blanket for the second scan. I was glad about that as she has no body fat and was just freezing.

We go back to the orthopedic doctor a week from tomorrow to talk about the MRI and he is going to answer our questions about the scoliosis surgery that is scheduled for Nov. 28th.

Mamac, I hope Erica has no problems at all with her surgery and that there is just good news from the doctor. I am sure that she is scared, but I know you will be there for her and let her lean on your strength.

Thanks for caring everyone.

Love, TS

September 9, 2005
1:08 pm
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mj
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Thanks for keeping us current on what is happening with your daughter. I hope that the surgery will fix her spine curviture so that she can lead a normal and happy life.

September 17, 2005
11:58 am
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tooscared
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Hi everyone. Just thought I would post an update. Surgery is definitely going to be Nov. 28th. We went to see the doctor again yesterday and he talked more to us and answered questions. Apparently our daughter has a wedge in her vertebra at L1, which is the first lumbar vertebra. He said it was a strange thing and didn't know how it would impact surgery - if he might have to go a little lower to make corrections. The MRI showed the wedge too. I guess it is one vertebra that is tilting the opposite way or something. Kind of freaks me a little, but I just have to stay calm.

She will go back in on Nov. 7th to take bending x-rays so they can see how her spine moves and figure out exactly where they will fuse.

This is more than I can handle at the moment and my counselor and I talked about how I am dealing with the facts right now and what has to be done, but I am not ready to deal with the feeling part. I just want to be strong for my daughter and be there for her in all ways.

I need to get off the computer now. Hubby is getting irritated with me and my emotions can't take that right now. Talk to you all later. Just wanted you to know so you could be praying. Pray that we don't have to go too low into her lumbar area.

Thanks,
Love, TS

September 17, 2005
12:21 pm
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mj
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(((((((((TS))))))))))

I can tell that you are really worried. Just wanted to let you know I care about your daughter and You and all of your family. How can I pray but only for Gods' Will. I trust in being positive and Hopeful.
Hope that you and Hubby can be gentle with each other during this stressful period of not knowing.

September 17, 2005
12:25 pm
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mamacinnamon
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TS;

Why are hubbys so damn concerned w/ us on the computer. Mine is the same way. I'm sorry.

Hang in there. You are a great mom, and you are human. Nobody says you have to be superwoman and hold up to evrything. It's ok to cry; even in front of your daughter. It's important she know you are human too. I'm sure she is just as afraid as you are. Gather your strength and be there for you daughter as I know you will. The two of you love, hug, cry, laugh. Always be upfront and honest as possible w/ her. Bless you and her.

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